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HIV and Drug Abuse Research Ethics Publications

Trainees' Mentored Research Project (MRP) Publications on HIV and Drug Abuse Research Ethics

The Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI) fellows are encouraged to disseminate the findings of their Mentored Research Project (MRP) through publications. Listed below are a selection of research ethics articles in the following areas of HIV/AIDS prevention and treatment and addiction and substance abuse research: vulnerable populations; people who use drugs (PWUD); LGBTQ; MSM; transgender youth and adults; racial/ethnic minorities; institutional review boards (IRB); community-engaged research (CEnR); trust/mistrust; therapeutic misconception; informed consent; stigma; compensation; incentives; research risks and benefits; recruitment; confidentiality; privacy; mHealth and social media; sex workers; people who inject drugs (PWID); sexual and gender minority; harm reduction.

Abadie, R., Brown, B., & Fisher, C. B. (2019). "Money Helps": People who inject drugs and their perceptions of
financial compensation and its ethical implications.
 Ethics & Behavior, 29(8), 607–620. Keywords: financial compensation; coercion; trust; reciprocity; PWID; Puerto Rico

Abadie, R., Fisher, C. B., & Dombrowski, K. (2021). “He’s under oath”: Privacy and Confidentiality views among people who inject drugs enrolled in a study of social networks and Human Immunodeficiency Virus/Hepatitis C Virus risk. Journal of empirical research on Human Research Ethics, 1 – 8.  DOI: 10.1177/15562646211004411. Keywords: PWID, ethics, anonymity, community-based research, institutional review board (IRB)

Abadie, R., Goldenberg, S., Welch-Lazoritz, M., & Fisher, C. B. (2018). Establishing trust in HIV/HCV research among people who inject drugs (PWID): Insights from empirical research. PLoS One, 13(12).
keywords: trust/mistrust, community health research, HIV/AIDS prevention and treatment, motivation, recruitment, Puerto Rico

Antebi-Gruszka N, Talan AJ, Reisner SL, & Rendina, H.J. (2020). Sociodemographic and behavioural factors associated with testing for HIV and STIs in a US nationwide Sample of transgender men who have sex with men. Sexually Transmitted Infections.
keywords: MSM, TMSM, LGBTQ, HIV/AIDS prevention and treatment, sexually transmitted infections​

Balvanz, P., Yamanis, T. J., Mulawa, M. I., Mwikoko, G., Kajuna, D., Kilonzo, M. N., Kajula, L. J., Leatherman, S., & Maman, S. (2019). Microfinance and health interventions: Factors influencing loan repayment success with young men in Dar es Salaam, Tanzania. Global public health, 14(2), 254–270.
keywords: poverty, microcredit, health leadership intervention

Basta, T. B., Stambaugh, T., & Fisher, C. B. (2015). Efficacy of an Educational Intervention to Increase Consent for HIV Testing in Rural Appalachia. Ethics & Behavior, 25(2): 129-145. keywords: informed consent, HIV testing, HIV/AIDS prevention and treatment, confidentiality, stigma, home testing

Bonar, E.E., Koocher, G.P., Benoit, M.F., Collins, R.L., Cranford, J.A., & Walton, M.A. (2017). Perceived Risks and Benefits in a Text Message Study of Substance Abuse and Sexual Behavior. Ethics and Behavior, 28(3): 218-234. keywords: mHealth, text messaging, participation, emerging adults, vulnerable populations, research ethics

Bragard, E., Fisher, C.B., & Curtis, B. (2019). “They know what they are getting into:” Researchers confront the benefits and challenges of online recruitment for HIV research. Ethics & Behavior. 1-15. Keywords: sampling, data integrity, privacy, researcher responsibility, social media, Internet research ethics

Broaddus, M. R., & Marsch, L. A. (2015). Risks and benefits of text message-delivered and small group-delivered sexual health interventions among African American women in the Midwestern U.S. Ethics & Behavior, 25(2), 146–168. Keywords: research risks and benefits, institutional review boards (IRB), privacy, stigma of participation, informed consent, mHealth, HIV/STIs, text messaging

Brown, B., Davtyan, M., & Fisher, C.B. (2015). Peruvian female sex workers’ ethical perspectives on their participation in an HPV vaccine clinical trial. Ethics & Behavior, 25(2): 115-128. Keywords: ethics, privacy and confidentiality, trust/mistrust, informed consent, research risks and benefits, Peru

Carlberg-Racich S. (2020). "Normally I Try and Capture a Moment, and With This I Had to Create a Moment": Implications of Anonymous Photography Protocols in Photovoice Research with People Who Inject Drugs. Journal of empirical research on human research ethics: JERHRE, 1556264620983139. Advance online publication. Keywords: PWID, addiction and substance abuse, people who use drugs (PWUD), human subjects’ protections, privacy, self-determination theory, research protections

Chiu, C. J., Menacho, L., Fisher, C., & Young, S. D. (2015). Ethics Issues in Social Media–Based HIV Prevention in Low-and Middle-Income Countries. Cambridge Quarterly Healthcare Ethics, 24(3) 303-310. Keywords: e-health education programs, men who have sex with men (MSM), Harnessing Online Peer Education (HOPE) program, Peru, ethics, recruitment, consent, social networking technologies, HIV/AIDS

Chiu, C. J., Menacho, L., & Young, S. D. (2016). The Association Between Age and Ethics-Related Issues in Using Social Media for HIV Prevention in Peru. Ethics & Behavior, 26(2), 99-109., Keywords: Harnessing Online Peer Education (HOPE), men who have sex with men (MSM), HIV/AIDS prevention and treatment, recruitment, informed consent, Peru

Curtis, B.L. (2014). Social networking and online recruiting for HIV research: ethical challenges. Journal of Empirical Research on Human Research Ethics, 9(1), 58-70. Keywords: ethics, Internet research, online recruitment, social media, privacy and confidentiality, informed consent

Dangerfield Ii, D. T., Wylie, C., & Anderson, J. N. (2021). Conducting Virtual, Synchronous Focus Groups Among Black Sexual Minority Men: Qualitative Study. JMIR public health and surveillance, 7(2), e22980. Keywords: HIV/AIDS prevention and treatment, Black sexual minority men (BSMM), racial/ethnic minorities, research ethics, LGBTQ, engagement, recruitment, sexual health, telehealth​

Fletcher, F. E., Rice, W. S., Ingram, L. A., & Fisher, C. B. (2019). Ethical Challenges and Lessons Learned from Qualitative Research with Low-Income African American Women Living with HIV in the South. Journal of health care for the poor and underserved, 30(4S), 116–129.
Keywords: research ethics, health inequities, women living with HIV (WLWH), diverse research populations, stigma, racial/ethnic minorities

Fonner, V. A., Ntogwisangu, J., Hamidu, I., Joseph, J., Fields, J., Evans, E., Kilewo, J., Bailey, C., Goldsamt, L., Fisher, C. B., O'Reilly, K. R., Ruta, T., Mbwambo, J., & Sweat, M. D. (2021). "We are in this together:" dyadic-level influence and decision-making among HIV serodiscordant couples in Tanzania receiving access to PrEP. BMC public health, 21(1), 720. Keywords: HIV/AIDS prevention and treatment, pre-exposure prophylaxis (PrEP), dyad, recruitment, informed consent, intervention implementation, sub-Saharan Africa

Garett, R., Menacho, L., & Young, S.D. (2017). Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study.Prevention Science: Official Journal of the Society for Prevention Research, 18(2): 225-232. Keywords: men who have sex with men (MSM), HIV/AIDS prevention and treatment, research ethics, research risks and benefits, privacy and confidentiality, informed consent, Harnessing Online Peer Education (HOPE)

Goldenberg, S. M., Brouwer, K. C., Jimenez, T. R., Miranda, S. M., & Mindt, M. R. (2016). Enhancing the Ethical Conduct of HIV Research with Migrant Sex Workers: Human Rights, Policy, and Social Contextual Influences. PLoS One, 11(5). Keywords: research ethics, racial/ethnic minorities, trust/mistrust, HIV/AIDS prevention and treatment, vulnerable populations

Goldenberg, S.M., Mindt, M.R., Jimenez, T.R., Brouwer, K.C., Miranda, S.M., & Fisher, C.B. (2014). Structural and interpersonal benefits and risks of participation in HIV research: perspectives of female sex workers in Guatemala. Ethics & Behavior, 25(2): 97-114
Keywords: research ethics, research risks and benefits, HIV/AIDS prevention and treatment, stigma, trust/mistrust, Central America

Goldenberg, S. M., Rocha Jiménez, T., Brouwer, K. C., Morales Miranda, S., & Silverman, J. G. (2018). Influence of indoor work environments on health, safety, and human rights among migrant sex workers at the Guatemala-Mexico Border: a call for occupational health and safety interventions. BMC International Health and Human Rights, 18(1), 9. Keywords: HIV/AIDS prevention and treatment, vulnerable populations, racial/ethnic minorities, agency, violence and exploitation, substance use

Guadamuz, T. E., Goldsamt, L. A., & Boonmongkon, P. (2015). Consent Challenges for Participation of Young Men Who Have Sex With Men (YMSM) in HIV Prevention Research in Thailand. Ethics & Behavior, 25(2), 180–195. Keywords: HIV prevention and treatment, vulnerable populations, LGBTQ, institutional review boards (IRB), guardian consent, youth and young adults

Gunn, A., Hardesty, M., Overstreet, N., & Wallace, S. (2021). “Every time I tell my story I learn something new”: Voice and inclusion in research with Black women with histories of substance use and incarceration. Criminology and Criminal Justice. Keywords: research ethics, racial/ethnic minorities, anti-oppressive research, substance use, stigma, trauma

Hubach, R. D., O'Neil, A., Stowe, M., Giano, Z., Curtis, B., & Fisher, C. B. (2020). "Out here the rainbow has mud on it": Perceived Confidentiality Risks of Mobile Technology-Based Ecologic Momentary Assessment to Assess High-Risk Behaviors Among Rural Men Who Have Sex with Men. Archives of sexual behavior. Advance online publication. Keywords: privacy, MSM, mHealth, EMA, HIV/AIDS prevention and treatment

John, S. A., Robles, G., Starks, T. J., & Rendina, H. J.(2019). Differences Between Groups of Pre-exposure Prophylaxis (PrEP) Using Couples in HIV-Negative/Unknown Relationships. Journal of acquired immune deficiency syndromes (1999), 81(4), 419–428. Keywords: men who have sex with men (MSM), HIV/AIDS, sexually transmitted infections (STIs), LGBTQ

Kostick, K. M., Weeks, M., & Mosher, H. (2014). Participant and Staff Experiences in a Peer-Delivered HIV Intervention with Injection Drug Users.” Journal of Empirical Research on Human Research Ethics, 9(1), 6-18. Keywords: research ethics, HIV/AIDS prevention and treatment, IDU, people who inject drugs (PWID), peer-delivered prevention

Madhivanan, P., Krupp, K., Kulkarni, V., Kulkarni, S., Vaidya, N., Shaheen, R., Philpott, S. & Fisher, C.B. (2014). HIV testing among Pregnant Women Living with HIV in India: Are Private Providers Routinely Violating Women’s Human Rights? BMC International Health and Human Rights, 14(1), 7. Keywords: HIV/AIDS, antenatal care, privacy and confidentiality, perinatal transmission, women living with HIV (WLWH), prevention of mother-to-child transmission of HIV (PMTCT), vulnerable populations​

Meunier, É., Sundelson, A. E., Tellone, S., Alohan, D., Fisher, C. B., & Grov, C. (2021). Willingness to Attend Sex Venues in the Context of the COVID-19 Pandemic in New York City: Results from an Online Survey with Sexual and Gender Minority Individuals. Journal of urban health : bulletin of the New York Academy of Medicine, 1–12. Advance online publication. Keywords: collective sex venues (CSV), HIV/STI

Mulawa, M.I., Yamanis, T.J., Kajula, L.J. et al. (2018). Structural Network Position and Performance of Health Leaders Within an HIV Prevention Trial. AIDS and Behavior. 22(9):3033-3043. Keywords: HIV/AIDS prevention and treatment, Tanzania, social networks, popular opinion leader (POL)​

Nelson, K. M., Carey, M. P., & Fisher, C. B. (2019). Is Guardian Permission a Barrier to Online Sexual Health Research Among Adolescent Males Interested in Sex With Males?. Journal of sex research, 56(4-5), 593–603. Keywords: men who have sex with men (MSM), institutional review boards (IRB), research ethics, vulnerable populations, privacy and confidentiality

Overstreet, N. M., Okuyan, M., & Fisher, C. B. (2018). “Perceived Risks and Benefits in IPV and HIV Research: Listening to the Voices of HIV-Positive African American Women.” Journal of Empirical Research on Human Research Ethics, 13(5):511-524. Keywords: intimate partner violence, HIV/AIDS, research ethics, African American Women, vulnerable populations, stigma

Pasipanodya, E. C., Kohli, M., Fisher, C. B., Moore, D. J., & Curtis, B. (2020). Perceived risks and amelioration of harm in research using mobile technology to support antiretroviral therapy adherence in the context of methamphetamine use: a focus group study among minorities living with HIV. Harm reduction journal, 17(1), 41. Keywords: harm reduction, HIV/AIDS, mHealth, antiretroviral therapy (ART), men who have sex with men (MSM), research ethics, vulnerable populations

Pearson, C. R., Parker, M., Fisher, C. B., & Moreno, C. (2014). Capacity Building from the Inside Out: Development and Evaluation of a CITI Ethics Certification Training Module for American Indian and Alaska Native Community Researchers. Journal of Empirical Research on Human Research Ethics, 9(1), 46-57. Keywords: American Indian and Alaska Native (AI/AN), community engaged research (CEnR), culturally responsive human subjects training, racial/ethnic minorities, research ethics education

Philpin, M.M., Guta, A., Wurtz, H., Kinnard, E.N., Bradley-Perrin, I., & Goldsamt, L. (2021). How Black and Latino young men who have sex with men in the United States experience and engage with eligibility criteria and recruitment practices: implications for the sustainability of community-based research. Critical Public Health. Keywords: MSM, racial/ethnic minorities, HIV/AIDS prevention and treatment, vulnerable populations, youth and young adults

Reed, E., Fisher, C. B., Blankenship, K. & Brook, S. W Khoshnood, K. (2016). Why Female Sex Workers Participate in HIV Research: The Illusion of Voluntariness. AIDS Care, 1-5. Keywords: research ethics, informed consent, coercion, vulnerable populations, incentives and motivation

Reed, E., Khoshnood, K., Blankenship, K. M., & Fisher, C. B. (2014). Confidentiality, Privacy, and Respect: Experiences of Female Sex Workers Participating in HIV Research in Andhra Pradesh, India. Journal of Empirical Research on Human Research Ethics, 9(1), 19-28. Keywords: vulnerable population, research ethics, HIV/AIDS prevention and treatment, trust/mistrust

Rendina, H. J. & Mustanski, B. (2018). Privacy, trust, and data sharing in web-based and mobile research: Participant perspectives in a large nationwide sample of men who have sex with men in the United States. Journal of Medical Internet Research, 20(7), e233
Keywords: confidentiality, trust/mistrust, MSM, LGBTQ, social networking, HIV/AIDS prevention and treatment

Rendina, H.J., & Parsons, J.T. (2018). Factors associated with perceived accuracy of the Undetectable = Untransmittable slogan among men who have sex with men: Implications for messaging scale-up and implementation. Journal of the International AIDS Society, 21(1). Keywords: MSM, HIV/AIDS prevention and treatment, treatment as prevention (TasP), LGBTQ, stigma

Rocha-Jimézes, T., Brouwer, K.C., Silverman, J.G., Morales-Miranda, S., & Goldenberg, S.M. (2016). Migration, violence, and safety among migrant sex workers: a qualitative study in two Guatemalan communities. Culture, Health & Sexuality, 18(9): 965-79. Keywords: Guatemala, vulnerable populations, insecurity and abuse, human rights, racial/ethnic minorities

Rocha-Jimézes, T., Brouwer, K.C., Silverman, J.G., Morales-Miranda, S., & Goldenberg, S.M. (2017). Exploring the Context and Implementation of Public Health Regulations Governing Sex Work: A Qualitative Study with Migrant Sex Workers in Guatemala. Journal of Immigrant and Minority Health, 19(5): 1235-1244. Keywords: vulnerable populations, HIV/AIDS prevention and treatment, sexually transmitted infections (STIs), racial/ethnic minorities

Roth, A.M., Felsher, M., Reed, M., Goldshear, J.L., Truong, Q., Garfein, R.S., & Simmons, J. (2017). Potential benefits of using ecological momentary assessment to study high-risk polydrug use. mHealth, 3:46. Keywords: addiction and substance abuse, people who inject drugs (PWID), EMA, self-reflection, catharsis, altruism, social support

Roth, A.M., Rossi, J., Goldshear, J.L., Truong, Q., Armenta, R.F., Lankenau, S.E., Garfein, R.S., & Simmons, J. (2017). Potential Risks of Ecological Momentary Assessment Among Persons Who Inject Drugs. Substance Use & Misuse, 52(7): 840-847. Keywords: mHealth, people who inject drugs (PWID), addiction and substance abuse, EMA, risk, data collection and security

Rudolph, A.E., Bazzi, AR, Fish, S. (2016). Ethical considerations and potential threats to validity for three methods commonly used to collect geographic information in studies among people who use drugs. Addictive Behaviors, 61: 84-90. Keywords: research ethics, privacy and confidentiality, people who inject drugs (PWID), addiction and substance abuse

Rudolph, A.E., Young, A.M., & Havens, J.R. (2017). A rural/urban comparison of privacy and confidentiality concerns associated with providing sensitive location information in epidemiologic research involving persons who use drugs. Addictive Behavior, 74: 116-111.
Keywords: PWUD, people who inject drugs (PWID), addiction and substance abuse, risk environment, research ethics

Rudolph, A. E., Young, A. M., & Havens, J. R. (2020). Privacy, Confidentiality, and Safety Considerations for Conducting Geographic Momentary Assessment Studies Among Persons Who Use Drugs and Men Who Have Sex with Men. Journal of urban health: bulletin of the New York Academy of Medicine, 97(2), 306–316. Keywords: research ethics, PWUD, people who inject drugs (PWID), MSM, GMA, addiction and substance abuse

Sauceda, J. A., Dubé, K., Brown, B., Pérez, A. E., Rivas, C. E., Evans, D., & Fisher, C. B. (2021). Framing a Consent Form to Improve Consent Understanding and Determine How This Affects Willingness to Participate in HIV Cure Research: An Experimental Survey Study. Journal of empirical research on human research ethics : JERHRE, 16(1-2), 78–87. Keywords: HIV/AIDS prevention and treatment, informed consent, fuzzy-trace theory, recruitment, research ethics, decision-making

Smartlowit-Briggs, L., Pearson, C., Whitefoot, P., Altamirano, B.N., Womack, M., Bastin, M., & Dombrowski, J.C. (2016). Community-Based Assessment to Inform a Chlamydia Screening Program for Women in a Rural American Indian Community. Sexually Transmitted Diseases, 43(6): 390-395. Keywords: racial/ethnic minorities, American Indian and Alaska Native (AI/AN), Indian Health Service, sexually transmitted disease (STD), research ethics

Tamir, H., Krupp, K., Stephens, D.P., Zohourian, T., Dorcius, P.M., Arun, A., Fisher, C.B., & Madhivanan, P. (2018). Addressing Prevention Among HIV-Uninfected Women in PMTCT Programs in South India. The Journal of the Association of Nurses in AIDS Care, 29(1): 45-52.  Keywords: health care, HIV prevention, India, prevention of mother-to-child transmission of HIV, women

Thokoane, C. (2014). Ethical challenges for piloting sexual health programs for youth in Hammanskraal, South Africa: Bridging the gap between rights and services. Ethics & Behavior, 25(2): 169-179. Keywords: ethics, youth, sexual health, HIV/AIDS, research, rights, services, South Africa

​Underhill K. (2014). Legal and ethical values in the resolution of research-related disputes: how can IRBS respond to participant complaints? Journal of Empirical Research on Human Research Ethics, 9(1), 71–82. Keywords: dispute resolution, participant complaint, institutional review board, research-related injury

Underhill, K. (2019). Righting Research Wrongs: An Empirical Study of How U.S. Institutions Resolve Grievances Involving Human Subjects, 18. Yale Journal of Health Policy, Law, & Ethics. Keywords: research ethics, human research subjects

Urada, L. A., & Simmons, J. (2014). A Collaborative Methodology for Investigating the Ethical Conduct of Research on Female Sex Workers in the Philippines. Journal of Empirical Research on Human Research Ethics, 9(1), 41-45.

Urada, L. A., & Simmons, J. (2014). Social and Structural Constraints on Disclosure and Informed Consent for HIV Survey Research Involving Female Sex Workers and Their Bar Managers in the Philippines. Journal of Empirical Research on Human Research Ethics, 9(1), 29-40. Keywords: female sex workers, research ethis, disclosure, consent, social, structural, interventions, HIV, substance use

Urada, L. A., Halterman, S., Raj, A., Tsuyuki, K., Pimentel-Sumbulan, K., and & Silverman, J.G. (2016). Socio-structural and behavioral risk factors associated with trafficked history of female bar/spa entertainers in the sex trade in the Philippines. International Journal of Gynecology and Obstetrics: the Official Organ of the International Federation of Gynecology and Obstetrics, 132(1): 55-9. Keywords: HIV/AIDS, sex work, socio-structural factors, sexually transmitted infections, trafficking

Urada, L. A., Simmons, J. Wong, B., Tsuyuki, K., Condino-Enrera, G. A human rights-focused HIV intervention for sex workers in Metro Manila, Philippines: evaluation of effects in a quantitative pilot study. International Journal of Public Health, 1-13, 2016. Keywords: Sex work, HIV/AIDS, human rights, community mobilization, violence, empowerment, transactional sex, men who have sex with men (MSM), female sex workers, trafficking

Weeks, M. R., Kostick, K., Li, J., Dunn, J., McLaughlin, P., Richmond, P., Choudhury, S., Obidoa, C., Mosher, H., & Martinez, M. (2015). Translation of the Risk Avoidance Partnership (RAP) for Implementation in Outpatient Drug Treatment Clinics. Journal of psychoactive drugs, 47(3), 239–247. Keywords: peer intervention, intervention translation, implementation, drug treatment clinics, HIV

​Young, A.M., Rudolph, A.E. & Havens, J.R. (2018). Network-Based Research on Rural Opioid Use: an Overview of Methods and Lessons Learned. Curr HIV/AIDS Rep, 15(2):113-119. Keywords: social networks, rural, substance use, HIV, hepatitis C, Appalachia, opioid