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HIV and Drug Abuse Research Ethics Publications

Trainees' Mentored Research Project (MRP) Publications on HIV and Drug Abuse Research Ethics

The Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI) fellows are encouraged to disseminate the findings of their Mentored Research Project (MRP) through publications. Listed below are a selection of research ethics articles in the following areas of HIV/AIDS prevention and treatment and addiction and substance abuse research: vulnerable populations; people who use drugs (PWUD); LGBTQ; MSM; transgender youth and adults; racial/ethnic minorities; institutional review boards (IRB); community-engaged research (CEnR); trust/mistrust; therapeutic misconception; informed consent; stigma; compensation; incentives; research risks and benefits; recruitment; confidentiality; privacy; mHealth and social media; sex workers; people who inject drugs (PWID); sexual and gender minority; harm reduction.

Abadie, R., Brown, B., & Fisher, C. B. (2019). "Money Helps": People who inject drugs and their perceptions of financial compensation and its ethical implications. Ethics & Behavior, 29(8), 607–620.

Abadie, R., Goldenberg, S., Welch-Lazoritz, M., & Fisher, C. B. (2018). Establishing trust in HIV/HCV research among people who inject drugs (PWID): Insights from empirical research. PLoS One, 13(12).

Antebi-Gruszka N, Talan AJ, Reisner SL, & Rendina, H.J. (2020). Sociodemographic and behavioural factors associated with testing for HIV and STIs in a US nationwide Sample of transgender men who have sex with men. Sexually Transmitted Infections.

Balvanz, P., Yamanis, T. J., Mulawa, M. I., Mwikoko, G., Kajuna, D., Kilonzo, M. N., Kajula, L. J., Leatherman, S., & Maman, S. (2019). Microfinance and health interventions: Factors influencing loan repayment success with young men in Dar es Salaam, Tanzania. Global public health, 14(2), 254–270.

Basta, T. B., Stambaugh, T., & Fisher, C. B. (2015). Efficacy of an Educational Intervention to Increase Consent for HIV Testing in Rural Appalachia. Ethics & Behavior, 25(2): 129-145.

Bonar, E.E., Koocher, G.P., Benoit, M.F., Collins, R.L., Cranford, J.A., & Walton, M.A. (2017). Perceived Risks and Benefits in a Text Message Study of Substance Abuse and Sexual Behavior. Ethics and Behavior, 28(3): 218-234.

Bragard, E., Fisher, C.B., & Curtis, B. (2019). “They know what they are getting into:” Researchers confront the benefits and challenges of online recruitment for HIV research. Ethics & Behavior. 1-15.

Broaddus, M. R., & Marsch, L. A. (2015). Risks and benefits of text message-delivered and small group-delivered sexual health interventions among African American women in the Midwestern U.S. Ethics & Behavior, 25(2), 146–168.

Brown, B., Davtyan, M., & Fisher, C.B. (2015). Peruvian female sex workers’ ethical perspectives on their participation in an HPV vaccine clinical trial. Ethics & Behavior, 25(2): 115-128.

Carlberg-Racich S. (2020). "Normally I Try and Capture a Moment, and With This I Had to Create a Moment": Implications of Anonymous Photography Protocols in Photovoice Research with People Who Inject Drugs. Journal of empirical research on human research ethics : JERHRE, 1556264620983139. Advance online publication.

Chiu, C. J., Menacho, L., Fisher, C., & Young, S. D. (2015). Ethics Issues in Social Media–Based HIV Prevention in Low-and Middle-Income Countries. Cambridge Quarterly Healthcare Ethics, 24(3) 303-310.

Chiu, C. J., Menacho, L., & Young, S. D. (2016). The Association Between Age and Ethics-Related Issues in Using Social Media for HIV Prevention in Peru. Ethics & Behavior, 26(2), 99-109.

Curtis, B.L. (2014). Social networking and online recruiting for HIV research: ethical challenges. Journal of Empirical Research on Human Research Ethics, 9(1), 58-70.

Dangerfield Ii, D. T., Wylie, C., & Anderson, J. N. (2021). Conducting Virtual, Synchronous Focus Groups Among Black Sexual Minority Men: Qualitative Study. JMIR public health and surveillance, 7(2), e22980.

Fonner, V. A., Ntogwisangu, J., Hamidu, I., Joseph, J., Fields, J., Evans, E., Kilewo, J., Bailey, C., Goldsamt, L., Fisher, C. B., O'Reilly, K. R., Ruta, T., Mbwambo, J., & Sweat, M. D. (2021). "We are in this together:" dyadic-level influence and decision-making among HIV serodiscordant couples in Tanzania receiving access to PrEP. BMC public health, 21(1), 720.

Fletcher, F. E., Rice, W. S., Ingram, L. A., & Fisher, C. B. (2019). Ethical Challenges and Lessons Learned from Qualitative Research with Low-Income African American Women Living with HIV in the South. Journal of health care for the poor and underserved, 30(4S), 116–129.

Garett, R., Menacho, L., & Young, S.D. (2017). Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study. Prevention Science: Official Journal of the Society for Prevention Research, 18(2): 225-232.

Goldenberg, S. M., Brouwer, K. C., Jimenez, T. R., Miranda, S. M., & Mindt, M. R. (2016). Enhancing the Ethical Conduct of HIV Research with Migrant Sex Workers: Human Rights, Policy, and Social Contextual Influences. PLoS One, 11(5).

Goldenberg, S.M., Mindt, M.R., Jimenez, T.R., Brouwer, K.C., Miranda, S.M., & Fisher, C.B. (2014). Structural and interpersonal benefits and risks of participation in HIV research: perspectives of female sex workers in Guatemala. Ethics & Behavior, 25(2): 97-114

Goldenberg, S. M., Rocha Jiménez, T., Brouwer, K. C., Morales Miranda, S., & Silverman, J. G. (2018). Influence of indoor work environments on health, safety, and human rights among migrant sex workers at the Guatemala-Mexico Border: a call for occupational health and safety interventions. BMC International Health and Human Rights, 18(1), 9.

Guadamuz, T. E., Goldsamt, L. A., & Boonmongkon, P. (2015). Consent Challenges for Participation of Young Men Who Have Sex With Men (YMSM) in HIV Prevention Research in Thailand. Ethics & Behavior, 25(2), 180–195.

Gunn, A., Hardesty, M., Overstreet, N., & Wallace, S. (2021). “Every time I tell my story I learn something new”: Voice and inclusion in research with Black women with histories of trauma, addiction and incarceration. Criminology and Criminal Justice.

Hubach, R. D., O'Neil, A., Stowe, M., Giano, Z., Curtis, B., & Fisher, C. B. (2020). Perceived Confidentiality Risks of Mobile Technology-Based Ecologic Momentary Assessment to Assess High-Risk Behaviors Among Rural Men Who Have Sex with Men. Archives of sexual behavior. Advance online publication.

John, S. A., Robles, G., Starks, T. J., & Rendina, H. J. (2019). Differences Between Groups of Pre-exposure Prophylaxis (PrEP) Using Couples in HIV-Negative/Unknown Relationships. Journal of acquired immune deficiency syndromes (1999), 81(4), 419–428.

Kostick, K. M., Weeks, M., & Mosher, H. (2014). Participant and Staff Experiences in a Peer-Delivered HIV Intervention with Injection Drug Users.” Journal of Empirical Research on Human Research Ethics, 9(1), 6-18.

Madhivanan, P., Krupp, K., Kulkarni, V., Kulkarni, S., Vaidya, N., Shaheen, R., Philpott, S. & Fisher, C.B. (2014). HIV testing among Pregnant Women Living with HIV in India: Are Private Providers Routinely Violating Women’s Human Rights? BMC International Health and Human Rights, 14(1), 7.

Meunier, É., Sundelson, A. E., Tellone, S., Alohan, D., Fisher, C. B., & Grov, C. (2021). Willingness to Attend Sex Venues in the Context of the COVID-19 Pandemic in New York City: Results from an Online Survey with Sexual and Gender Minority Individuals. Journal of urban health : bulletin of the New York Academy of Medicine, 1–12. Advance online publication.

Mulawa, M.I., Yamanis, T.J., Kajula, L.J. et al. (2018). Structural Network Position and Performance of Health Leaders Within an HIV Prevention Trial. AIDS and Behavior. 22(9):3033-3043.

Nelson, K. M., Carey, M. P., & Fisher, C. B. (2019). Is Guardian Permission a Barrier to Online Sexual Health Research Among Adolescent Males Interested in Sex With Males?. Journal of sex research56(4-5), 593–603.

Overstreet, N. M., Okuyan, M., & Fisher, C. B. (2018). “Perceived Risks and Benefits in IPV and HIV Research: Listening to the Voices of HIV-Positive African American Women.” Journal of Empirical Research on Human Research Ethics, 13(5):511-524.

Pasipanodya, E. C., Kohli, M., Fisher, C. B., Moore, D. J., & Curtis, B. (2020). Perceived risks and amelioration of harm in research using mobile technology to support antiretroviral therapy adherence in the context of methamphetamine use: a focus group study among minorities living with HIV. Harm reduction journal17(1), 41.

Pearson, C. R., Parker, M., Fisher, C. B., & Moreno, C. (2014). Capacity Building from the Inside Out: Development and Evaluation of a CITI Ethics Certification Training Module for American Indian and Alaska Native Community Researchers. Journal of Empirical Research on Human Research Ethics, 9(1), 46-57.

Philpin, M.M., Guta, A., Wurtz, H., Kinnard, E.N., Bradley-Perrin, I., & Goldsamt, L. (2021). How Black and Latino young men who have sex with men in the United States experience and engage with eligibility criteria and recruitment practices: implications for the sustainability of community-based research. Critical Public Health.

Reed, E., Fisher, C. B. Blankenship, K. & Brook, S. W Khoshnood, K. (2016). Why Female Sex Workers Participate in HIV Research: The Illusion of Voluntariness. AIDS Care, 1-5.

Reed, E., Khoshnood, K., Blankenship, K. M., & Fisher, C. B. (2014). Confidentiality, Privacy, and Respect: Experiences of Female Sex Workers Participating in HIV Research in Andhra Pradesh, India. Journal of Empirical Research on Human Research Ethics, 9(1), 19-28.

Rendina, H. J. & Mustanski, B. (2018). Privacy, trust, and data sharing in web-based and mobile research: Participant perspectives in a large nationwide sample of men who have sex with men in the United States. Journal of Medical Internet Research, 20(7), e233.

Rendina, H.J., & Parsons, J.T. (2018). Factors associated with perceived accuracy of the Undetectable = Untransmittable slogan among men who have sex with men: Implications for messaging scale-up and implementation. Journal of the International AIDS Society, 21(1).

Rocha-Jimézes, T., Brouwer, K.C., Silverman, J.G., Morales-Miranda, S., & Goldenberg, S.M. (2016). Migration, violence, and safety among migrant sex workers: a qualitative study in two Guatemalan communities. Culture, Health & Sexuality, 18(9): 965-79.

Rocha-Jimézes, T., Brouwer, K.C., Silverman, J.G., Morales-Miranda, S., & Goldenberg, S.M. (2017). Exploring the Context and Implementation of Public Health Regulations Governing Sex Work: A Qualitative Study with Migrant Sex Workers in Guatemala. Journal of Immigrant and Minority Health, 19(5): 1235-1244.

Roth, A.M., Felsher, M., Reed, M., Goldshear, J.L., Truong, Q., Garfein, R.S., & Simmons, J. (2017). Potential benefits of using ecological momentary assessment to study high-risk polydrug use. mHealth, 3:46.

Roth, A.M., Rossi, J., Goldshear, J.L., Truong, Q., Armenta, R.F., Lankenau, S.E., Garfein, R.S., & Simmons, J. (2017). Potential Risks of Ecological Momentary Assessment Among Persons Who Inject Drugs. Substance Use & Misuse, 52(7): 840-847.

Rudolph AE, Bazzi AR, Fish S. (2016). Ethical considerations and potential threats to validity for three methods commonly used to collect geographic information in studies among people who use drugs. Addictive Behaviors, 61: 84-90.

Rudolph, A.E., Young, A.M., & Havens, J.R. (2017). A rural/urban comparison of privacy and confidentiality concerns associated with providing sensitive location information in epidemiologic research involving persons who use drugs. Addictive Behavior, 74: 116-111.

Rudolph, A. E., Young, A. M., & Havens, J. R. (2020). Privacy, Confidentiality, and Safety Considerations for Conducting Geographic Momentary Assessment Studies Among Persons Who Use Drugs and Men Who Have Sex with Men. Journal of urban health: bulletin of the New York Academy of Medicine97(2), 306–316.

Sauceda, J. A., Dubé, K., Brown, B., Pérez, A. E., Rivas, C. E., Evans, D., & Fisher, C. B. (2021). Framing a Consent Form to Improve Consent Understanding and Determine How This Affects Willingness to Participate in HIV Cure Research: An Experimental Survey Study. Journal of empirical research on human research ethics : JERHRE, 16(1-2), 78–87.

Smartlowit-Briggs, L., Pearson, C., Whitefoot, P., Altamirano, B.N., Womack, M., Bastin, M., & Dombrowski, J.C. (2016). Community-Based Assessment to Inform a Chlamydia Screening Program for Women in a Rural American Indian Community. Sexually Transmitted Diseases, 43(6): 390-395.

Tamir, H., Krupp, K., Stephens, D.P., Zohourian, T., Dorcius, P.M., Arun, A., Fisher, C.B., & Madhivanan, P. (2018). Addressing Prevention Among HIV-Uninfected Women in PMTCT Programs in South India. The Journal of the Association of Nurses in AIDS Care, 29(1): 45-52.

Thokoane, C. (2014). Ethical challenges for piloting sexual health programs for youth in Hammanskraal, South Africa: Bridging the gap between rights and services. Ethics & Behavior, 25(2): 169-179.

Underhill K. (2014). Legal and ethical values in the resolution of research-related disputes: how can IRBS respond to participant complaints? Journal of Empirical Research on Human Research Ethics9(1), 71–82.

Underhill, K. (2019). Righting Research Wrongs: An Empirical Study of How U.S. Institutions Resolve Grievances Involving Human Subjects, 18. Yale Journal of Health Policy, Law, & Ethics.

Urada, L. A., & Simmons, J. (2014). A Collaborative Methodology for Investigating the Ethical Conduct of Research on Female Sex Workers in the Philippines. Journal of Empirical Research on Human Research Ethics, 9(1), 41-45.

Urada, L. A., & Simmons, J. (2014). Social and Structural Constraints on Disclosure and Informed Consent for HIV Survey Research Involving Female Sex Workers and Their Bar Managers in the Philippines. Journal of Empirical Research on Human Research Ethics, 9(1), 29-40.

Urada, L.A., Halterman, S., Raj, A., Tsuyuki, K., Pimentel-Sumbulan, K., and & Silverman, J.G. (2016). Socio-structural and behavioral risk factors associated with trafficked history of female bar/spa entertainers in the sex trade in the Philippines. International Journal of Gynecology and Obstetrics: the Official Organ of the International Federation of Gynecology and Obstetrics, 132(1): 55-9.

Urada, L.A., Simmons, J. Wong, B., Tsuyuki, K., Condino-Enrera, G. A human rights-focused HIV intervention for sex workers in Metro Manila, Philippines: evaluation of effects in a quantitative pilot study. International Journal of Public Health, 1-13, 2016.

Weeks, M. R., Kostick, K., Li, J., Dunn, J., McLaughlin, P., Richmond, P., Choudhury, S., Obidoa, C., Mosher, H., & Martinez, M. (2015). Translation of the Risk Avoidance Partnership (RAP) for Implementation in Outpatient Drug Treatment Clinics. Journal of psychoactive drugs, 47(3), 239–247.

Young, A.M., Rudolph, A.E. & Havens, J.R. (2018). Network-Based Research on Rural Opioid Use: an Overview of Methods and Lessons Learned. Curr HIV/AIDS Rep, 15(2):113-119.